Monday, October 19, 2009
A small request...
This post is for a little lady named Clare. This little girl has had so many hardships but through it all she has a smile that can melt the coldest of hearts. She is a miracle baby and she needs a few prayers right now. Please take a look at her Mom's latest post and include this sweet child and her family in your prayers.
Amanda
Thursday, October 8, 2009
Bits
Michael has an allergy to something and has broken out in hives all over his body.
Rebecca learned that she can have the office call home when she is "not feeling well".
Daniel is such a little character. I love how he sings and dances the whole day through.
My DH let me go to bed first last Friday night while he stayed up with Matthew until his next feed. I "heart" him!
I made banana muffins today and a homemade meal.
Matthew smiles and coos.
Michael calls his little brothers his little Dumplings, I am his big Tomato.
Rebecca is so keen when it comes to dancing. She even asked for an extra part in the Nutcracker. (No, I didn't encourage it. It was all her.)
Daniel held my hand and told me it was okay while my Dr. checked my section sight last week. Daniel kept saying, "It's okay Mommy. I'm here, I'm here".
My DH got the kids ready for school earlier this week while I sat and pumped for our Matthew. I love how much he supports my pumping.
I haven't cried all week.
Monday, September 21, 2009
Changes
He is still a tiny might and he sure lets us know when the stars are not aligned to his liking. Life has not been easy for him but he sure is one tough kid. He meets his team at the hospital once or twice a week. During one of those visits we came really close to having to have him admitted. I thank my lucky stars that the hospital was full and because he showed some improvement in the ER we were able to come home. His diagnosis, he has had an allergy to milk. More specifically to the protein in the milk. As a result he was put on a special formula that is awful. This stuff smells so bad going in and coming out isn't pleasant either. We have been able to put him back on my milk as long as I stay off of all dairy. If he doesn't get better then I will have to go off all protein until we can figure out how his little body is handling protein. He suffers from reflux so he takes medication for that twice a day. With all of this he developed a bottle adversion. Basically he blames the bottle for all his ailments. It makes sense, if you don't eat you don't get pain. Problem with this is that eating is essential to life. He now weighs 7lbs, 7 oz and if he continues to improve they won't admit him and gavage feed him. (Tube feed.)
He is now sporting his NAM (Nasoalveolar Molding) device. It wasn't love at first sight that's for sure but now I call it his little friend. He plays with it and sucks on it when his soother isn't around. As you can see by the picture above it is held in place by elastics and tape running on his little cheeks. These tapes have to been pulled tight as to not cause little sores in his mouth. He had one little sore last week and again it must have been the bottle to do it. ;) So we had a few days with tough feeds. His NAM is adjusted each week and hopefully we only have to do this for 12 weeks.
He had another echo for his heart and everything came back really good. I am thankful for the blessings that Matthew has received and I don't forget who or what caused his heart to heal.
Tuesday, September 1, 2009
A Week of Firsts
The only one not excited about all of this was Daniel. He was so upset that his sister was heading off. He wanted to go to and put on a backpack and everything. He was quite the little shadow yesterday and he seemed to always be under my feet. I hope to get to my ward Mom & Tots this week so that he can play and have something to do.
Matthew today had his first trip to an operating room. It wasn't anything major, he had a mold taken of his cleft palate for the appliance they are putting in next week. So happy birthday buddy, you are two weeks old today and have already had your first fast. He wasn't too impressed with the whole fasting bit. His doctor told me he was so good and only cried while the "mud" was in his mouth. Than after that he just looked around and was checking everything out.
Monday, August 17, 2009
Zero
So with a very full heart, I thank all of those who have prayed and fasted on our behalf. I thank those who have been so gracious to offer meals and child care. Don't you all worry, I will be calling!
Wednesday, July 22, 2009
Two Angels
